Millions of young people could miss out on safe and effective treatments because so few take part in medical research, new data shows. People aged 18–24 make up 8% of England’s population but only 4.4% of participants in health studies, according to the National Institute for Health and Care Research (NIHR).
Experts warn this underrepresentation means treatments are often tested mainly on older adults, making them less suitable for younger patients. “Young people face unique physical and mental health challenges,” said Kirsty Blenkins of the Association for Young People’s Health. “If research excludes them, it risks poorer outcomes and widening inequalities.”
Barriers include limited awareness, lack of targeted recruitment, and privacy concerns. The NIHR is urging more young people to join studies through its UK volunteer registry, which matches participants to research projects.
Dr Esther Mukuka, NIHR’s director for research inclusion, said: “Research isn’t just for serious illnesses — it shapes everyday care. If young people don’t take part, the treatments of tomorrow won’t reflect their needs.”
